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Caregivers

If you are a caregiver, you may be grieving someone who is still here: the person they were before illness, injury, or dementia changed them. This is a slow, ambiguous grief, often unacknowledged because the loss hasn't fully happened yet. You are holding both love and anticipatory sorrow, often alone, while also managing the endless practical demands of care. Your grief is real, and it deserves recognition and support of its own.

National Resource

Family Caregiver Alliance: The first nonprofit to address caregivers' needs nationwide, offering support, education, research, and policy advocacy for family caregivers.

Recommended Reading

Ambiguous Loss: Learning to Live with Unresolved Grief by Pauline Boss: The classic guide to grieving someone who is physically present but psychologically changed by dementia, chronic illness, or addiction, and the unresolved grief caregivers so often carry alone.

Grief & Support

Caregiver Action Network: A national family caregiver organization offering a peer-to-peer support network and practical resources for the long, slow loss that caregiving so often brings.

More Grief Support

Alzheimer's Association 24/7 Helpline: The leading voluntary health organization for Alzheimer's and dementia care, with a free 24/7 helpline and support programs deeply used by caregivers grieving the slow loss of the person they love while they are still here. Directly meets the ambiguous-loss side of the caregiver journey.

Association for Death Education and Counseling (ADEC): The professional association for grief and bereavement educators, counselors, and researchers, whose public side offers reliable grief education and a searchable directory of credentialed grief counselors that works for any state and any type of loss.

Hospice Foundation of America: A national nonprofit that has produced grief education and supportive programming for decades, including free webinars, articles, and guides for grievers and the people who help them. Warm, practical, and completely free.

Currently in crisis?

If your grief has become a crisis, you feel unsafe, or you are thinking about harming yourself, immediate support is available.

Call or Text 988

The 988 Suicide & Crisis Lifeline is available 24 hours a day, 7 days a week anywhere in the United States, free, confidential, and ready for anyone experiencing emotional distress or grief.

If this is a life-threatening emergency, call 911 immediately.

See all crisis resources